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fortunavirilisFriday and Saturday were a lovely evening and day. The doc took me off the worst of the pills- the knockout fizzy drug of doom. My MRI hasn't changed (yay, I think), but my EEG results aren't back yet. Hu and I had a nice dinner and dreamed of all the places we want to travel. We're keeping a journal this year of all the things in life we want to do and the people we want to be. I even stayed awake past 9pm (no evil pill!). Saturday we had the green market (giant napa cabbage of doom!!!), got some stuff done, then went hiking. I saw some lovely wildflowers. Hu saw some deer. I missed them! I was too focused on getting THE PERFECT PHOTOGRAPH of a flower. Silly me. I saw some nice birds too though. Then we went for Thai food with Audio and no one hated Thai (only I had ever had Thai before- weird).
Sunday totally requires a do-over. It started fine with a late brunch of eggs and ham (no ham for me since that too much food) and fruit salad and hash browns and biscuits (with maple sugar and butter). And then Hu had to start cleaning the oven instead of letting me make my meat loaves for the week. So I got annoyed and decided to clean out the office and the junk room (bonus = some fun time going through the nostalgia box of photos and stuff). That was probably too much because several hours later Hu checked on me and I was aggitated and pale. Then I had a complex partial seizure. Then while trying to nap afterwards (all I wanted in life at that point was to sleep) I kept having myoclonic seizures (both semi-awake and in my sleep). So after forcing me to eat dinner Hu called my doctor. And I got to take extra meds last night (in addition to my normal meds).
Today I am tired, tired, tired. And my shoulder feels like someone dragged me down the street from where I was jerking. Plus I got to log the entire seizure experience in excruciating detail in my seizure log (a bright red moleskin- red equal NOT FUN STUFF). But I haven't had another seizure. So, if all goes well I just get to wait until my already scheduled doctor's appointment on Friday. Fun times.
So for those of you who don't know... Hi, I'm Fortuna Virilis. I have epilepsy. Some days I love my life. Sometimes life is pain and I don't even remember what happened. This past weekend I got both. Each day is a new mystery for me to unravel...
Sunday totally requires a do-over. It started fine with a late brunch of eggs and ham (no ham for me since that too much food) and fruit salad and hash browns and biscuits (with maple sugar and butter). And then Hu had to start cleaning the oven instead of letting me make my meat loaves for the week. So I got annoyed and decided to clean out the office and the junk room (bonus = some fun time going through the nostalgia box of photos and stuff). That was probably too much because several hours later Hu checked on me and I was aggitated and pale. Then I had a complex partial seizure. Then while trying to nap afterwards (all I wanted in life at that point was to sleep) I kept having myoclonic seizures (both semi-awake and in my sleep). So after forcing me to eat dinner Hu called my doctor. And I got to take extra meds last night (in addition to my normal meds).
Today I am tired, tired, tired. And my shoulder feels like someone dragged me down the street from where I was jerking. Plus I got to log the entire seizure experience in excruciating detail in my seizure log (a bright red moleskin- red equal NOT FUN STUFF). But I haven't had another seizure. So, if all goes well I just get to wait until my already scheduled doctor's appointment on Friday. Fun times.
So for those of you who don't know... Hi, I'm Fortuna Virilis. I have epilepsy. Some days I love my life. Sometimes life is pain and I don't even remember what happened. This past weekend I got both. Each day is a new mystery for me to unravel...