fortunavirilis: (House-MD)
[personal profile] fortunavirilis
Does anyone have any experience with with the regional branches of the Epilepsy Foundation of America in finding an epilepsy specialist or with BCBS Advocate Service for disease mgmt services (in my case seizure disorder). I'm hoping to use one or both to find a new neurologist since:

1. My current neuro has no bedside manner- critical for determining seizure types when EEGs aren't popping anything.
2. My current neuro changed my meds 4 times in 4 weeks in January (at one point dropping my blood pressure to an almost deadly level). He has also never drawn blood for liver or kidney tests or to test for my proper medicinal levels (so when I knew my Topamax dosage was too low by instinct he had no way of knowing since we didn't have a baseline- he just changed my meds). He also cold turkeys me on and off med levels- bad idea.
3. I talked to a friend and he did the same thing to her for her migraines and almost killed her.
4. He just postponed my appointment (which was a reschedule of one I couldn't make it to last month- that I gave them advance notice for) because he didn't have enough appoints for a Friday afternoon and didn't feel like coming in. That is not how you treat an epilepsy patient- they didn't even ask if I was doing okay and could wait a week to come in.

So- has anyone used BCBS Advocate services or the Florida (or any local) Chapter of the Epilepsy Foundation for services? I've found two epileptologists within 25 miles on my own who take BCBS, but neither have rights at my local hospital. I'm not that worried (I've never had to be admitted to the ER for seizures) as long as I can state that if I get admitted to my local hospital that I never have to deal with my old doctor (which I doubt I would, but still). But there may be others out there and I don't know how to find them.

Also- is it okay to phone interview doctors? Has anyone done that? What's the best way to go about it if you do?


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