Apr. 22nd, 2009

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Apr. 22nd, 2009 09:48 am
fortunavirilis: (Ben Folds)
We having a running joke that I should change my Facebook default userpic to this one (me with Ben Folds). It IS a better photograph of me than most of the other recent photos of me that I have. But here's the catch and the humor, many of the people who find and friend me on Facebook haven't seen me in years (12 or more). And that is how they learn that I'm married. So, unless they know Ben Folds (and know what he looks like), they will probably- at least initially- assume that it is a photo of me with my HUSBAND. In fact, even some of my relatives on facebook who haven't friended Hu will think it is him until they find Hu, frind him and then get confused. We (me, my husband, Audio, just about most of my college friends I talk to regularly) find this hilarious.

So, knowing the confusion it will cause- should I do it anyway?
fortunavirilis: (House-MD)
Does anyone have any experience with with the regional branches of the Epilepsy Foundation of America in finding an epilepsy specialist or with BCBS Advocate Service for disease mgmt services (in my case seizure disorder). I'm hoping to use one or both to find a new neurologist since:

1. My current neuro has no bedside manner- critical for determining seizure types when EEGs aren't popping anything.
2. My current neuro changed my meds 4 times in 4 weeks in January (at one point dropping my blood pressure to an almost deadly level). He has also never drawn blood for liver or kidney tests or to test for my proper medicinal levels (so when I knew my Topamax dosage was too low by instinct he had no way of knowing since we didn't have a baseline- he just changed my meds). He also cold turkeys me on and off med levels- bad idea.
3. I talked to a friend and he did the same thing to her for her migraines and almost killed her.
4. He just postponed my appointment (which was a reschedule of one I couldn't make it to last month- that I gave them advance notice for) because he didn't have enough appoints for a Friday afternoon and didn't feel like coming in. That is not how you treat an epilepsy patient- they didn't even ask if I was doing okay and could wait a week to come in.

So- has anyone used BCBS Advocate services or the Florida (or any local) Chapter of the Epilepsy Foundation for services? I've found two epileptologists within 25 miles on my own who take BCBS, but neither have rights at my local hospital. I'm not that worried (I've never had to be admitted to the ER for seizures) as long as I can state that if I get admitted to my local hospital that I never have to deal with my old doctor (which I doubt I would, but still). But there may be others out there and I don't know how to find them.

Also- is it okay to phone interview doctors? Has anyone done that? What's the best way to go about it if you do?


fortunavirilis: (Default)

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